A day in my life
Day/Night medical
routine
7.00-So firstly i wake
up like every other normal person. I then empty my drainage bags, i then wash
my hands and disconnect my TPN:
-First i was my hands
-Then i wipe down my
table
-Get out all my
equipment- cap for my line, pair of gloves, saline flush, 4 alcohol wipes,
sterile field dressing kit, heparin flush.
-I then set it all up.
-Re-wash my hands
-Put on my gloves
-Then disconnect my
TPN.
7.15- I then do my
morning meds
Morphine (if I need
it)- This medication is used to treat severe pain.
•Liquid paraffin- This
is used to treat constipation
•Ranitidine- This is
used to treat Gastroesophagul Reflux Disease
•Thamicarb- This is
mixed with esomeprazole and helps dissolve it.
•Esomeprazole- This is
used to treat Gastroesophagul reflux disease.
•Buscopan- This is used
to treat pain and spasms
•Ondansatron- This is
to treat severe nausea and to relieve sickness.
•Metoclopramide
(reglan)- This is to help motility/ gastroparesis and is also an antisickness.
•Paracetmol- This is to
treat pain/aches and fevers.
•Movicol- This is used
for constipation
•Lactulose- This is
also for constipation
•Ibuprofen gel- This is
for muscle/joint pains and aches
•Halean cream- This is
used for granulation tissue around my stomas.
•Phosphate enema- This
is to treat severe constipation.
•Suppositories- This is
also to treat severe constipation.
•Selenium- This is a
supplement I don't get as I'm tube fed.
•Cholecalciferol - This
is to treat a vitamin D deficiency.
•Dioralite- This is to
treat dehydration and replace salts and sugars in your body and things such as
potassium and glucose.
•Sodium picosulphate-
This is a laxative that focuses on the motility of the bowel.
•Tramadol- This is PRN
and used to treat severe-moderate pain
•Biasycodal- Used for
dysmotility
•Sulcraphate-This helps
stop Gastrointestinal bleeds
•Heprin IV-Blood
thinner
•Micralax-For
constipation
•Flutrocortisone-For my
heart and blood pressure
•Ivabradine-For my
heart, its like a beta blocker
•Omega 3-This is to
help bad gut bacteria
•Magnesium- to help my
conditions
7:45- I then get
dressed, wash my face, clean my teeth and do my makeup.
My parents mix my feed
up, the feed I'm on is elemental but I'm not tolerating it at the moment but we
mix a sachet of this with 1000mls of water I think. I then put 40ml in to a
bottle and connect it up, at the moment I'm tolerating 5-10mls per hour for 12
hours.My feed has to be kept in the fridge and changed every 4 hours.
8:30-I then have bloods
done and a nurse come to my house.
10:10- I then go to
school for as long as i can manage.
Then at lunch time I
have:
•Morphine (if needed)
•Buscopan
•Tramadol
•Ivabradine
Glucogel (if needed)
•I also change my feed
as it's gone 4 hours so it's gone off.
(I take these at
12pm/1pm)
•Iburprofen gel
•Dioralite
Then mid afternoon I
have:
•Metoclopramide
•Ondansatron
•Paracetmol
(I take these at
3pm)
At 4pm/5pm I change my
feed again
Then evening I take:
•Morphine (if needed)
•Buscopan
•Iburprofen gel
•Ivabradine
•Tramadol
(I take these around
6pm)
5.00- I also watch TV
like greys anatomy or some sort of TV.
6.30-I then set up my
TPN ready to connect:
-First i wash my hands
-Then i get gloves,
saline flush, 2 giving sets, a 2 piece connector extention, a bioconnector, 9
alcohol wipes, sterile dressing kit.
-I then set up and
connect my TPN.
8.00- Then at night
time I take:
•Liquid parrafin
•Colecalciferol
•Ranitidine
•Haelan cream
•Metoclopramide
•Ondansatron
•Paracetmol
•Selenium
•Omega 3
•Magnesium
Biasycodal
•Sodium picosulphate
(I take these around
8pm/9pm)
9.00-i also turn my
feed off.
10:30-At late night I
take
•Amitriptiline
•Morphine (if
needed)
•Buscopan
•Iburprofen gel
•Dioralite
•Tramadol
•Flutrocortisone
•Ivabradine
11.00- I then try and
sleep if i can.
All my meds go through
my PEJ/Jejunostomy, this is a tube into my small intestine.
I also have a
PEG/Gastrostomy, this is a tube into my stomach, I have my PEG on free drainage
connected to a bile bag 24/7 because my stomach cannot digest bile or acid this
is because of a condition called gastroparesis, my intestines also reflux bile
and feed into my stomach (have backwards contractions) so draining also
helps get that out. I change my drainage bag every 24 hours.
